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Original Content at https://www.futurehealth.org/biofeedback_and_locked_in_ALS_Lou_gherigs.htm |
February 2, 2006
Biofeedback and Locked In Syndrome -- in ALS ( Amy
By Rob Kall
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Biofeedback and Locked In Syndrome
-- in ALS ( Amyotrphic Lateral Sclerosis ) or Lou Gherig's Disease Over the year's we've been repeatedly contacted by friends and family members of people in various stages of ALS. They are seeking the help of biofeedback to stay connected with their loved ones as the muscles stop working. There have been a number of studies and reports, using different approaches to biofeedback or applied psychophysiology to enable 'locked in' patients to communicate. The basic idea is that physiological sensors can detect changes in physiology that the patient voluntarily and intentionally makes-- as means of communicating, just as giving a thumb up or down is a signal. The articles and links below are provided as a service to help pull together some of the information. We also have a DVD of a workshop presented on the use of brain biofeedback to address this problem, presented by Niels Birbaumer, to our knowledge, the inventor of this approach. Futurehealth does offer biofeedback technology for sale. We make no promises that these technologies will enable you and your loved ones to communicate. Some people have purchased this equipment in an effort to try, to experiment with the technology. Please be clear that this is an expensive, unproven approach, though there is some research. One thing is clear, the early a patient gets started with this, before the 'locked in' situation is reached, the better the potential results.
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Oddball Science Helps "Locked In" People Communicate http://www.newswise.com/articles/view/513597/
Newswise One theme has run through my work for the past 40 plus years-- a desire to play a role in waking people up, raising their consciousness and empowering them. |